Mother tries to raise awareness about Hay-Wells syndrome

12/25/2012 | Ventura County Star (Calif.) (free registration)

A California mother is trying to raise public awareness of Hay-Wells syndrome, a rare disorder characterized by skin erosions or open sores for which there is no known cure. The disease, identified in the 1970s, is a type of ectodermal dysplasia so rare that few doctors have seen it.

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Ventura County Star (Calif.) (free registration)

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