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Patients go the extra mile for CFS research

Participants in an NIH study are being pushed to the limit of their physical capacity to determine what causes myalgic encephalomyelitis/chronic fatigue syndrome, and patient advocacy group Solve ME/CFS Initiative is establishing a registry to collect medical information and biologic samples for research. Nearly 500 patients have volunteered to participate in the NIH study, which involves more than a week in a hospital for brains scans, blood and genetic tests, sleep analyses, a spinal tap and gut bacteria tests for the eligibility screening phase alone.

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