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Gathering patient input before, during studies can improve clinical trials

Soliciting input from clinical study participants before and during a trial can improve participant retention, inform decisions made within development programs and "is far more efficient and valuable than coming up with development programs and then soliciting feedback from patients," says Elizabeth Manning, UCB Biosciences' patient engagement manager. Asking the right questions is key, says Novartis Pharmaceuticals Associate Director of Patient Engagement Management Therese Johnsen, and experts in patient recruitment, market research, data analytics and psychometrics should be involved in survey design.

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