Collaborators on the Human Genome Project agreed to make all genome sequences available in public databases within 24 hours whenever possible, marking a unique data-sharing initiative in biomedical research, but genomic data is increasingly siloed by governments, funding agencies, research institutes and private research organizations. "How do we get everyone in the world -- patients, clinicians and researchers -- to share?" asks clinical genomicist Heidi Rehm.
Data sharing spotty 20 years after first HGP publication
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