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Data sharing spotty 20 years after first HGP publication

Collaborators on the Human Genome Project agreed to make all genome sequences available in public databases within 24 hours whenever possible, marking a unique data-sharing initiative in biomedical research, but genomic data is increasingly siloed by governments, funding agencies, research institutes and private research organizations. "How do we get everyone in the world -- patients, clinicians and researchers -- to share?" asks clinical genomicist Heidi Rehm.

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